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Sexuality Publications
Not knowing the answers to very private questions can be as difficult as life with a disability. Your most powerful tool to managing your sexual life is information. This is a “short” list of publications you can add to your resources. If you see something you like, explore it, if you don’t see what you need, let me know. I will add new resources as I come across them. In the mean time, enjoy!

GENERAL BOOKS		Back to Top

The Sensuous Heart: Guidelines for Sex After a Heart Attack or Heart Surgery
Susanne Cambre, R.N., B.S.H.A.
This cartoon-style booklet discusses the emotional and physical needs of people who have had a heart attack or heart surgery. It answers questions about sexual intercourse and discusses the effects of alcohol, prescribed drugs, stimulants, and illegal drugs.
1990; $5.75; ISBN 0939838281; Pritchett & Hull Associates, Inc.

Sexual Concerns When Illness or Disability Strikes
Carol L. Sandowski, M.S.W., A.C.S.W.
This book discusses the possible effects of various medical conditions (arthritis, diabetes, spinal cord injury, alcoholism) on sexual functioning, relationships, self-esteem, and communication. The author explores treatments for sexual dysfunction.
1989; $43.95; ISBN 039806413X; Charles C. Thomas Publisher, Ltd.

The Sexual Politics of Disability: Untold Desires
Tom Shakespeare, Dominic Davies, Kath Gillespie-Sells, Editors
Based on first hand accounts, this book examines identity, relationships, sexuality, love, parenting, and abuse and it relates to disability. It demonstrates the barriers to disabled people’s sexual rights and sexual expression and the ways in which these obstacles are challenged.
1997; $18.95; ISBN 0304333298X; Continuum International Publishing Group, Inc.

Signs of Sexual Behavior: An Introduction to Some Sex-related Vocabulary in American Sign Language
James Woodward
This book presents sexuality-related vocabulary in American Sign Language. It offers clear illustrations of more than 130 signs. Comprehensive explanations and notes on derivation are included. A video illustrating the signs is also available.
1979; $9.95/book, $24.95/30 minute video, $29.95/book and video; ISBN 0932666027; T.J. Publishers.

BOOKS FOR PROFESSIONALS		Back to Top

Sexual Function In People with Disability and Chronic Illness: A Health Professional’s Guide
Marca L. Sipski and Craig J. Alexander
This book consists of 29 chapters written by over 30 contributors. It addresses general sexual function, specific disabilities and illnesses, and treatment concerns.
1997; $62; ISBN 0834208865; Aspen Publishers Inc.

Sexuality and Disabilities A Guide for Human Service Practitioners
Romel W. Mackelprang and Deborah Valentine, Editors
This collection of eight articles is intended to provide a better understanding of issues related to sexuality, intimacy, and disability. Titles include “Mental Retardation and Sexual Expression: An Historical Perspective,” “Responding To The Sexual Concerns of Persons with Disabilities,” “A Holistic Social Work Approach to Providing Sexuality Education and Counseling for Persons with Severe Disabilities,” and “Sexual Assault and People with Disabilities.”
1996; $24.95; ISBN 078900092X; The Haworth Press, Inc.

FOR PARENTS		Back to Top

A Look at Prenatal Screening
Disability Cool - Women's Stuff
I have been a feminist for as long as I can remember. Even as a young girl at the age of ten, I did not believe in the stereotypes that other young girls did. In college, I told a guy off for calling me a "chick". "I am not a chick or a girl - I am a woman", I told him strongly. I had not even met another feminist at the point in my life, but feminism seemed to come naturally to me.
Web Publication - Link: geocities.com/HotSprings/7319/woman.htm

An Easy Guide for Caring Parents: Sexuality and Socialization: A Book for Parents of People with Mental Handicaps
Lynn McKee and Virginia Blacklidge, M.D.
This book addresses the social needs of children with mental disabilities. It also discusses the role of parents in their children's sexuality education. It includes a comprehensive discussion of sexual development and discusses such topics as growing up, responsible sexual behavior, masturbation, social life, sexual orientation, fertility and birth control, sexual abuse, and marriage.
1986; $8; ISBN 0960689818; Planned Parenthood Shasta-Diablo.

Easy For You To Say: Q & As For Teens Living With Chronic Illness or Disability*
Miriam Kaufman, M.D.
This book provides straightforward answers to questions that teens have relating to chronic illness or disability. Chapters include “Sexuality,” “Family Relationships,” “Doctors and Medical Issues,” “Friends and Dating,” “School and Work,” “Alcohol, Drugs, and Medication,” “Recreation,” and “Transitions.”
1995; $15.95; ISBN 1550136194; Firefly Books.

CIRCULA		Back to Top

CIRCLES I: Intimacy & Relationships
Marklyn P. Champagne, R.N., M.S.W., and Leslie Walker-Hirsch, M. Ed.
This curriculum is for people with mild to moderate developmental disabilities. It consists of two parts. Part I: Social Distance is comprised of eleven videos designed to help students “see” social and sexual distance. It also explains relationship boundaries and relationship specific behaviors. Part II: Relationship Building is comprised of six videos that demonstrate how intimacy levels change as relationships change. The program also includes 12 videos, a wall teaching graph, 50 large laminated graph icons, 50 student “personal” graphs and icons, and a teacher’s guide.
1993; $599; James Stanfield Publishing Co.

The Family Education Program*
Katherine Simpson, M.F.C.C., editor
This manual includes complete curricula for teaching sexuality, self-esteem, and abuse prevention to students with developmental and learning disabilities. Areas covered include working with schools, setting up educational plans, working with parents, and dealing with teachers' concerns. The manual contains training outlines and resources, a complete section on audiovisual instruction, reproducible teaching graphics, and pretest and posttest evaluations.
1990; $30; Planned Parenthood Shasta-Diablo.

AUDIOVISUALS		Back to Top

All Of Us: Talking Together Sex Education For People With Developmental Disabilities
Program Development Associates
This video is intended for developmentally disabled adolescents and young adults, parents, and health care professionals who work with the developmentally disabled. It presents young people’s views on sexuality and parental concerns. It also addresses talking with children about sexuality issues, sexual abuse, HIV, and discussions between young people and health care providers about anatomy, contraception, and STDs.
1999; $195; Program Development Associates.

ORDERING INFORMATION		Back to Top

Sex Information & Education Council of Canada
850 Coxwell Avenue
East York, Toronto
Canada M4C 5R1
Phone: 416/466-5304
Fax: 416/778-0785
Web site: http://www.sieccan.org

The Sexual Health Network, Inc.
3 Mayflower Lane
Shelton, CT 06484
Phone/Fax: 203/924-4623
Web site: http://www.sexualhealth.com